Today we’d like to introduce you to Meagan Robinson.
Alright, so thank you so much for sharing your story and insight with our readers. To kick things off, can you tell us a bit about how you got started?
On June 30, 2023, our world changed forever with the birth of our third son, Chap Knox. He was our chunky, smiley, snuggly, easygoing baby who brought a new joy into our home. For three months, we loved him fiercely. He was the missing piece we never knew we needed.
Then, on Oct. 4th 2023 just three days after I returned to work from maternity leave, we lost him to Sudden Infant Death Syndrome (SIDS). There were no warnings. No explanations. Just heartbreak that shattered us to our core.
There are no words to describe what it’s like to bury your baby. The ache is constant, the questions unending. But even in our grief, we felt a quiet prompting—a call to not let his short life go unnoticed. If Chap’s story could help just one family, support just one breakthrough in research, or give purpose to just one moment of unbearable pain… then we knew we had to speak. We had to move.
In the months that followed, I joined the Butterflies and Birdies Foundation, where I now serve as the Co-Chair of Research. This role gives me a way to fight back against the helplessness of SIDS. It gives Chap’s name a purpose beyond his days on earth.
This spring, we hosted our first annual Clay Shoot for Chap and Claytie (Our close friends lost their baby 11 months before us, Clayton Tex, at just 7 months old from SIDs as well), a fundraiser benefiting SIDS research and the foundation’s ongoing mission to protect and educate families. The outpouring of support was overwhelming—friends, family, strangers, and sponsors came together with us in grief, in action, and in hope. It was a beautiful day, and I believe Heaven met Earth as we honored our boy.
Losing Chap changed everything. But through it all, we have seen God’s grace in the darkness. We’ve learned that pain and purpose can coexist, and that legacy isn’t measured in years—it’s measured in love.
We miss him every second. But we carry him in everything we do.
How Our Organization Supports Grieving Families
Unfortunately, not every death can be prevented. But, if we can save just one life, SIDS organizations know they’re making progress. In time, we hope that one life turns into two lives and so forth. This is why our goals are to bring awareness to infant loss, educate new parents on SIDS and support families who are grieving. Below are some of the ways we do this:
Donate CuddleCots. CuddleCots are cooling mattresses that help prevent deterioration. This allows parents and families to spend more time with their sleeping infants. They can dress the baby, take pictures, plan for the funeral and more.
Donate Owlets. To keep babies safer while sleeping, our foundation donates Owlet Socks to new parents. These socks fit right on baby’s foot and notify parents if baby needs assistance.
Host golf fundraisers. As with other infant loss organizations, the Butterflies and Birdies Foundation must raise money to continue our efforts. One of the ways we do this is by hosting charity golf tournaments and most recently a clay shoot.
Resources, education and support. Our SIDS organizations are here to help new parents and families that have lost an infant. You can always turn to us for suggestions on stillborn support groups and other resources.
Alright, so let’s dig a little deeper into the story – has it been an easy path overall and if not, what were the challenges you’ve had to overcome?
Grief is never a smooth road and you never know when something will smack you down, but growing with Butterflies and Birdies Foundation has been nothing short of amazing. This organization was started by two wonderful ladies that also experienced loss from SIDs and Stillborn, but invited Paige and myself alongside to further grow our mission.
Our first Clay Shoot for Chap and Claytie was a powerful step forward—proof that even in loss, love leads. This is how we carry our boy’s legacy: with purpose, with hope, and for every family still searching for answers. The clay shoot was a quick idea that turned in to something we made happen in a short amount of time and was very successful in raising $125,000. We had to come together to rebrand and incorporate a new logo that could honor all four of our babies, but it was a united decision that has been fun to watch evolve.
Can you tell our readers more about what you do and what you think sets you apart from others?
I’m a teacher who has been in education for many years, but for the past two years, I’ve had the privilege of serving at Santa Rita Elementary in Liberty Hill. I love my job and the incredible community that surrounds me. When people hear that I returned to the same school after the loss of our son, Chap, they often express surprise—but I always tell them it’s because of the people. This community has loved and supported my family and me through one of the hardest seasons of our lives, and for that, I’m forever grateful.
Teaching isn’t easy these days—with the pressures of testing, growth, and ongoing budget challenges—but I’m passionate about working with kids. Seeing them light up when they master a new skill or gain confidence is what keeps me going.
Still, my favorite title is “mom.” I have four children: Cash (11), Conley (8), Camp (5 months), and Chap, our precious baby in Heaven. Being a mom is my greatest joy, and watching my kids grow into who God created them to be is one of life’s sweetest gifts.
Since losing Chap to SIDS, I’ve also stepped into a new role as Co-Chair of Research at the Butterflies and Birdies Foundation, where I help raise funds and awareness for SIDS research. It’s one way we continue to honor Chap’s life and turn our grief into purpose—supporting other families and fighting for answers so no one has to walk this road alone.
Before we let you go, we’ve got to ask if you have any advice for those who are just starting out?
When growing a foundation or program:
1. Start with your “why” and keep it at the center.
Your story and purpose—what moved you to take this step—should shape everything. When things get hard (and they will), return to that why. Let your passion be your anchor.
2. Build slowly, with intention.
You don’t have to do everything at once. Focus on building a strong foundation: a clear mission, trusted board members, and one or two impactful initiatives. It’s better to do a few things well than many things halfway.
3. Find your people.
Surround yourself with a team that believes in your mission and balances your strengths. Don’t be afraid to ask for help—especially from those with experience in nonprofits, fundraising, law, or finance. Humble collaboration is key.
4. Stay rooted in your values.
Let your faith, integrity, and compassion guide every decision. It’s easy to get caught up in numbers, events, or comparison—but real impact comes from staying true to your mission and who God has called you to be.
5. Celebrate the small wins.
Impact takes time. Whether it’s raising $100 or helping one family—every act of good is meaningful. Don’t overlook the holy in the small.
6. Protect your heart.
When your mission is born out of loss or personal pain, advocacy can be emotionally exhausting. Make space for your own healing. Take breaks. Don’t feel guilty for resting.
7. Tell your story often and with boldness.
Vulnerability builds connection. When people hear the real reason behind your foundation, they connect with it. You don’t need perfect words—just an open heart.
8. Pray for provision and direction.
God opens doors no one else can. Pray for wisdom, divine connections, and the courage to say yes—even when it feels scary.
Contact Info:
- Website: https://butterfliesandbirdies.org/
- Instagram: https://www.instagram.com/butterfliesandbirdies/
- Facebook: https://www.facebook.com/pages/category/Cause/Butterflies-and-Birdies-2162614524019144/
Image Credits
Shot Maker Media
@shotmakermedia on instagram
